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We founded Riaan Research Initiative to find and fund treatments for Cockayne Syndrome, an ultra-rare, fatal genetic disease that impacts our two year-old son Riaan Singh. Cockayne Syndrome was discovered in 1936 but it has no approved treatments. We are working to raise significant funds to finish the research projects our organization has started: creating a gene therapy for Cockayne Syndrome with UMass Chan Medical School, and working to find already approved FDA drugs that may be repurposed to halt or reverse the symptoms of Cockayne Syndrome. Because the disease is so rare, the majority of funding for treatments comes from patient advocacy groups like ours. In other words, if we don't push for treatments for our children, no one else will. We really appreciate your support! Please check out our website at riaanresearch.org for more information.
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Name | Donate Amount | Date |
---|---|---|
Allison Rogers | $75.00 | December 2022 |
Liz Petersen | $250.00 | November 2022 |
Anonymous | $15.00 | November 2022 |
Bill Martin-Doyle | $500.00 | November 2022 |
Saverio Maviglia | $100.00 | November 2022 |
Matthew Moll | $1,000.00 | November 2022 |
Ranga Papanna | $500.00 | November 2022 |
Debbie Spector | $35.00 | November 2022 |
Match Fund | $400.00 | November 2022 |
Karen Jiang | $2,000.00 | November 2022 |
Match Fund | $100.00 | November 2022 |
Karin DiGeorge | $100.00 | November 2022 |
Match Fund | $100.00 | November 2022 |
Caroline Vangrieken | $100.00 | November 2022 |
Match Fund | $150.00 | November 2022 |
Aasees Kaur | $150.00 | November 2022 |
Match Fund | $108.00 | November 2022 |
Shanti Khalsa | $108.00 | November 2022 |
Match Fund | $50.00 | November 2022 |
Nirinjan Khalsa | $50.00 | November 2022 |
Match Fund | $135.00 | November 2022 |
Anonymous | $135.00 | November 2022 |
Match Fund | $100.00 | November 2022 |
Clare Horkan | $100.00 | November 2022 |
Match Fund | $150.00 | November 2022 |
Anonymous | $150.00 | November 2022 |
Match Fund | $25.00 | November 2022 |
Carol Brody | $25.00 | November 2022 |
Match Fund | $100.00 | November 2022 |
Nermina Arnaud | $100.00 | November 2022 |
Match Fund | $150.00 | November 2022 |
J. N. | $150.00 | November 2022 |
Match Fund | $100.00 | November 2022 |
Richard DiGeorge | $100.00 | November 2022 |
Match Fund | $100.00 | November 2022 |
Lori Friedman | $100.00 | November 2022 |
Match Fund | $50.00 | November 2022 |
Winnifred O'Connell | $50.00 | November 2022 |
Match Fund | $18.00 | November 2022 |
Sandra Wilson-Gittens | $18.00 | November 2022 |
Match Fund | $50.00 | November 2022 |
Amande Gill | $50.00 | November 2022 |
Match Fund | $50.00 | November 2022 |
Anonymous | $50.00 | November 2022 |
Match Fund | $100.00 | November 2022 |
Susan Marc | $100.00 | November 2022 |
Match Fund | $200.00 | November 2022 |
M. J. | $200.00 | November 2022 |
Match Fund | $20.00 | November 2022 |
Mark Brower | $20.00 | November 2022 |
Match Fund | $30.00 | November 2022 |
Lisa Fleischer | $30.00 | November 2022 |
Match Fund | $100.00 | November 2022 |
Anonymous | $100.00 | November 2022 |
Match Fund | $200.00 | November 2022 |
Hardyal Singh | $200.00 | November 2022 |
Match Fund | $25.00 | November 2022 |
Grace Khalsa | $25.00 | November 2022 |
Match Fund | $50.00 | November 2022 |
Eunice Ramirez | $50.00 | November 2022 |
Match Fund | $50.00 | November 2022 |
Linda Schildkraut | $50.00 | November 2022 |
Anonymous | $50.00 | November 2022 |
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